Our Work On Health Data Sharing
‍

• In 2019 CODE co-hosted a year-long program with the HHS Office of the Chief Technology Officer (CTO). Through a series of three Roundtables, the project, titled Sharing and Utilizing Data to Enhance and Protect Health and Well-Being, engaged nearly 200 expert participants. The Roundtables explored the following topics: Sharing and Utilizing Health Data for AI Applications; Balancing Privacy with Health Data Access; and Leveraging Data on SDOH. We also launched HealthDataSharing.org to provide findings from these Roundtables in a single resource. This project was supported by the Patient-Centered Outcomes Research Institute (PCORI).

Our Work On Vector-borne Disease
‍

• In December 2018 CODE co-hosted the Lyme Innovation Roundtable with the HHS Office of the CTO. The Roundtable convened both medical experts and patients, and identified high-value datasets and resources from all sectors to improve the prevention, diagnosis, and treatment of Lyme disease.
• The Roundtable and CODE’s report laid the groundwork for a $10 million LymeX Diagnostics Prize competition, an initiative of the LymeX Innovation Accelerator. The Accelerator is a $25 million public-private partnership launched in 2020 to expedite progress and catalyze change in Lyme disease research.
• In April 2021, CODE co-hosted a LymeX Roundtable with HHS and the Steven & Alexandra Cohen Foundation, convening stakeholders from the Lyme community to overcome obstacles to progress and develop new data-driven strategies to tackle the disease. The Roundtable led to a LymeX Research Workshop, which brought researchers together with patients and advocates to discuss patient-driven approaches to Lyme disease research. 
• CODE is continuing our work on vector-borne diseases through support for the National Public Health Strategy to Prevent and Control Vector-Borne Diseases in People, in a project with the Centers for Disease Control and Prevention (CDC). With the CDC’s Division of Vector-Borne Diseases, and in partnership with MITRE, we hosted a Roundtable in the spring of 2024 to gather additional public input on the national strategy.

• In July 2018, CODE co-hosted a Roundtable on Data Sharing Policies, Data-Driven Solutions, and the Opioid Crisis with the HHS Office of the CTO.
• In 2020, CODE co-hosted a virtual Webinar and Roundtable on Leveraging Data to Address Sickle Cell Disease. CODE held these events in partnership with the HHS Office of the CTO and Office of the Assistant Secretary for Health (OASH). (See our Equity Impact Page for details). 
•  In 2020, CODE also explored the impact of social and economic factors on the fight against COVID-19 at a Roundtable and Webinar on Using SDOH Data to Fight COVID-19 and Support Recovery Efforts. The Webinar engaged nearly 900 individuals and the Roundtable convened a large group of experts. CODE developed seven high-priority recommendations designed to advance the use of SDOH data to fight COVID-19 in the short term.